The Positive Twist - a podcast about dystonia
The Positive Twist is a podcast about the third most common movement disorder, dystonia. In every episode we meet patients, caregivers and experts, sharing facts, and their stories related to dystonia, each ending with a positive twist!
Episodes
17 episodes
The Pros and Cons of DBS Surgery, with DBS Patient Amybel Taylor
In this episode, we sit down with DBS patient Amybel Taylor as she shares her journey of being diagnosed with dystonia at a very young age. After years of living with the condition, Amybel, with the support of her parents, made the life-changin...
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Season 3
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Episode 6
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1:16:23
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Mikko Juutinen on Pivoting Your Career and Hobbies With Dystonia
In this episode we meet Dr Mikko Juutinen, a former practicing dentist who has been diagnosed with dystonia in his hands, legs, calves and back. His diagnosis has led to pivoting in his career as well as in some of his hobbies. Listen to this i...
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Season 3
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Episode 4
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26:20
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Dr. Michael Zech on Dystonia Research and Receiving the David Marsden Award 2023
In this episode we meet Dr Michel Zech from the Institute of Human Genetics, Technical University of Munich and the Institute of Neurogenomics, Helmholtz Zentrum München, in Munich, Germany.Dr Zech received the David Marsden Award 2023 ...
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28:56
Jenny Sixt Shares All About Alexander Technique - A Fascinating Alternative Therapy for Dystonia
In this episode of The Positive Twist Podcast Jenny Sixt joins us to share about a fascinating therapy called Alexander Technique. "The Alexander Technique is a skill for self-development teaching you to change long-standing habits that cause u...
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Season 3
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Episode 2
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24:33
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DBS Treatment and The Importance of Team Effort with Prof. Alfonso Fasano
In this episode of The Positive Twist Podcast we have an informative and fascinating conversation about dystonia and DBS with Professor Alfonso Fasano from the University of Toronto.We walk through everything from finding help initially...
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Season 3
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Episode 1
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1:01:43
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Beyond the Diagnosis: Living Day-to-Day with Dystonia, Featuring Adam Kalinowski
This episode is in remembrance of Adam Kalinowski, who passed away just over a year ago. Dystonia Europe honors his profound impact and enduring legacy serving as our President and serving the Dystonia community. Adam was a passionate adv...
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Season 2
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Episode 5
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55:49
Finding Answers in the Patient Community With Merete Avery
In this episode Merete Avery, a board member from Dystonia Europe shares her dystonia story from first symptoms to diagnosis and finding the right treatment thanks to getting involved in the local patient advocacy group in Norway.Merete...
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Season 2
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Episode 4
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28:14
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Jan's Journey With DBS, Featuring DBS Nurse Russell
In this episode we meet dystonia patient Jan Farnworth and DBS nurse Russell Mills. Jan shares her story of living with dystonia and Russell about serving dystonia patients in supporting their journey with DBS. LINKS:Dystonia...
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Season 2
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Episode 3
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38:13
The Road Back to Running - A Dystonia Patient Journey With Jukka Sillanpää
In this episode of the Positive Twist Podcast we meet Jukka a successful career man and runner who was diagnosed with dystonia in the middle of life. He tells his story of what he went through, how he found the right treatment and his road back...
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Season 2
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Episode 2
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56:07
A Dystonia Love Story - What Good Relationships Mean For Coping Well, With Gill and John Ainsley
In this episode we meet with Gill and John Ainsley who tell the story of how Gill was diagnosed with dystonia in her forties. They were in the middle of life, rearing children and excelling in their careers. The diagnosis came with a lot of dif...
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Season 2
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Episode 1
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40:51
Finding Success in Career, Love and Life, in Spite of Living With Cervical Dystonia, Featuring Emmanuel Dalmas
In this episode we get to know Emmanuel Dalmas from France. He tells his very inspiring story of finding success in all aspects of life, in spite of living with dystonia. It took Emmanuel 20 years to receive the right diagnosis, a problem tha...
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Season 1
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Episode 7
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34:13
The Importance of Physiotherapy and a Collaborative Approach to Treatment of Dystonia, With Physiotherapist Johanna Blom
In this episode we meet with Johanna Blom a physiotherapist who has specialized in helping patients with dystonia. She tells us about how she works with a team of medical professionals to ensure that her patients get the best treatment possible...
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Season 1
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Episode 6
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22:39
Ten Years of The David Marsden Award, an Interview With Recipients Prof. Mark Edwards and Asst. Prof. Niccolo Mencacci
In this episode of the Positive Twist we meet with Professor Mark Edwards from St George's in London, and Assistant Professor Niccolo Mencacci at Northwestern University outside of Chicago (USA). Mark was the first recipient of the David Marsde...
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Season 1
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Episode 5
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37:56
Living With a Neurological Disorder During The Covid-19 Pandemic, A Talk With Donna Walsh and Marjan Jahanshahi
In this episode we talk to Donna Walsh from EFNA, the European Federation of Neurological Associations and Professor Emeritus Marjan Jahanshahi from UCL Queens Square Institute of Neurology in London.We discuss the state of the world fo...
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Season 1
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Episode 4
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45:04
How Dystonia Europe Came to Be, and What a Life's Work in Patient Advocacy Has Brought Alistair Newton
In today's episode we hear Alistair Newton tell his dystonia story, as well as share with us his important involvement in the dystonia community. Alistair founded Dystonia Europe as a result of being diagnosed with cervical dystonia himse...
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Season 1
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Episode 3
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52:52
Making Dystonia Your Friend, with Monika Benson
In this episode we sit down with Monika Benson, Executive Director of Dystonia Europe. Monika has been living with cervical Dystonia for 19 years, and after years of feeling isolated she now feels as if she has a big "Dystonia family".A...
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Season 1
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Episode 2
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19:25
How DBS surgery transformed a life, with Stephen Batey
Stephen Batey from Newcastle, UK experienced his first symptoms of dystonia as a seven year old. It started in his right foot and eventually spread to his back, neck, and upper limbs. Stephen was connected with a children's neurologist who gave...
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Season 1
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Episode 1
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38:38
