The Positive Twist - a podcast about dystonia
The Positive Twist is a podcast about the third most common movement disorder, dystonia. In every episode we meet patients, caregivers and experts, sharing facts, and their stories related to dystonia, each ending with a positive twist!
Podcasting since 2020 • 13 episodes
The Positive Twist - a podcast about dystonia
Latest Episodes
DBS Treatment and The Importance of Team Effort with Prof. Alfonso Fasano
In this episode of The Positive Twist Podcast we have an informative and fascinating conversation about dystonia and DBS with Professor Alfonso Fasano from the University of Toronto.We walk through everything from finding help initially...
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Season 3
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Episode 1
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1:01:43
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Beyond the Diagnosis: Living Day-to-Day with Dystonia, Featuring Adam Kalinowski
This episode is in remembrance of Adam Kalinowski, who passed away just over a year ago. Dystonia Europe honors his profound impact and enduring legacy serving as our President and serving the Dystonia community. Adam was a passionate adv...
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Season 2
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Episode 5
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55:49
Finding Answers in the Patient Community With Merete Avery
In this episode Merete Avery, a board member from Dystonia Europe shares her dystonia story from first symptoms to diagnosis and finding the right treatment thanks to getting involved in the local patient advocacy group in Norway.Merete...
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Season 2
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Episode 4
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28:14
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Jan's Journey With DBS, Featuring DBS Nurse Russell
In this episode we meet dystonia patient Jan Farnworth and DBS nurse Russell Mills. Jan shares her story of living with dystonia and Russell about serving dystonia patients in supporting their journey with DBS. LINKS:Dystonia...
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Season 2
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Episode 3
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38:13
The Road Back to Running - A Dystonia Patient Journey With Jukka Sillanpää
In this episode of the Positive Twist Podcast we meet Jukka a successful career man and runner who was diagnosed with dystonia in the middle of life. He tells his story of what he went through, how he found the right treatment and his road back...
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Season 2
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Episode 2
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56:07